If you have advanced chronic kidney disease, you may be able to help with an important study

Published on August 27, 2015

More info is available at choosingdialysis.org.

email address: epoch@ArborResearch.org

If you have advanced chronic kidney disease, you may be able to help with an important study.

The National Kidney Foundation is partnering with Arbor Research Collaborative for Health on the study called Empowering Patients On Choices for Renal Replacement Therapy (EPOCH-RRT), which is funded by the Patient-Centered Outcomes Research Institute (PCORI).

The goal of the study is to help patients to make an informed choice when deciding on a type of dialysis.

In this phase of the study, we are testing how a new web-based decision aid may help patients choosing between in-center hemodialysis and peritoneal dialysis. Results from the study will provide a practical tool to assist patients and their families in choosing a dialysis type.

Participation in this study involves using the decision aid website and completing an online questionnaire to assess your feelings about choosing a dialysis type.

To participate, you must meet all of the following criteria:

You are at least 18 years old

You have advanced chronic kidney disease (eGFR <25mL/min/1.73m²)

You are not on dialysis now, and have not been in the past

You have access to the internet

You are willing to review the decision aid website and complete online questionnaire(s).

If you decide to participate, you will receive a $25.00 gift card as a sign of appreciation for your time.

For more information or to participate in the study, please contact the EPOCH-RRT study at epoch@ArborResearch.org.

Thanks to the National Kidney Foundation for publicizing this study.

Dialysis is the most common treatment when kidneys fail. Most patients choose between two types of dialysis: hemodialysis (HD) and peritoneal dialysis (PD).

Based on a specific patient’s needs and his/her clinical parameters, one of the two dialysis types is usually going to be a better fit for a given patient. The goal of this study is to identify factors that matter most to patients with kidney disease and study how they are impacted by the different types of dialysis.

Other treatment options for kidney failure include hemodialysis done at home, kidney transplant, or conservative management (when dialysis is not started). These treatment options are not included in the study at this time.

Which Factors Matter Most?
To understand what is most important to a patient, we have interviewed more than 180 patients with kidney disease (some before they start dialysis, some after they start) and we are currently summarizing our findings.

Results from these interviews will help us identify factors that are most important to patients and will provide practical information to inform choice of dialysis type for patients with kidney disease and their families.